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Haemochromatosis Conference
25 & 26 August 2018 Newcastle NSW: People living with haemochromatosis, their families, researchers and health professionals will gather together in Newcastle for one weekend in August to talk...
View ArticleClinical Trail Opportunity Westmead Sydney NSW
A clinical trial of Hepcidin for people with haemochromatosis is about to start at Westmead Hospital. Hepcidin is a protein that regulates iron in the body. People who are on stable venesections with...
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World Haemochromatosis Week 4 – 10 June 2018
World Haemochromatosis Week will be observed from 4-10 June 2018. We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to...
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Wonthaggi VIC – Community Contra Dance for Haemochromatosis
There are lots of ways to raise awareness of haemochromatosis. in your local community. This is a fun way to do that while having a great time with friends, family and neighbours. Ellen Hubble, a...
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Haemochromatosis education at pharmacies
This year during Haemochromatosis Awareness Week in August we worked with the Pharmacy Guild and Pharmaceutical Society Australia to raise awareness among pharmacy staff of haemochromatosis and the...
View ArticleReview of support and information for people with haemochromatosis
Helping with Haemochromatosis Report Our recent “Helping with Haemochromatosis” project has come to an end. We’d like to thank everyone who has participated in this project during the last few months....
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The GP Red Book and Hereditary Haemochromatosis
Haemochromatosis Australia is delighted to have been consulted during the preparation of the 2016 edition of ‘Guidelines for preventative practice in general practice, 9th edition ’ (commonly referred...
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Illawarra Region – Haemochromatosis Information
Illawarra / Wollongong – we need your help! We will be setting up haemochromatosis information displays at Coledale Markets Sunday 25th June, and Bunnings Wollongong Sunday 6th and Saturday 12th One of...
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Ready Set Go … the race is on to see which state can save the most lives Red25
Spring into action during National Blood Donor Week and make your blood count. Join our Red25 Donation Challenge between 1st September – 31st December and ask your family and friends to do the same. It...
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INFO LINE Closure – Christmas Break
Our volunteers will be taking a well-earned break over the festive season so the INFO LINE 1300 019 028 will be closed for two weeks. Today will be the last day, reopening Monday 7 January. We wish...
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Wonthaggi VIC – Community Contra Dance for Haemochromatosis
There are lots of ways to raise awareness of haemochromatosis. in your local community. This is a fun way to do that while having a great time with friends, family and neighbours. Ellen Hubble, a...
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Australian leads Haemochromatosis International
Raising global awareness of the most common genetic disorder that not enough people know about is the purposeful mission of Dr Dianne Prince, from Sydney, in stepping up this month as incoming...
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World Haemochromatosis Week 3 – 9 June 2019
World Haemochromatosis Week will be observed from 3-9 June 2018. We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to...
View ArticleComing Events – Melbourne 24 & 25 August 2019
Public Information Session – Melbourne Saturday 24 August 2019 1.30pm – 3.30pmLibrary at the Dock (Performance Space), 107 Victor Harbour Promenade, DOCKLANDS Haemochromatosis Australia will host a...
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Volunteer Information Day – Melbourne 25 August 2019
Volunteer Information Day – Sunday 25 August 2019 Haemochromatosis Australia will host a volunteer training and discussion event from 8.30 am – 3 pm in Melbourne. If you are interested in volunteering...
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App to iron out wrinkles in haemochromatosis treatment
My Iron Manager – the App for people with haemochromatosis New technology is now available to support people with haemochromatosis who regularly need to manage iron levels in their body to remain...
View ArticlePublic Information Session – Perth
Public Information Session – Perth Saturday 19 October 2.00 pm State Library of WA, Great Southern Room (fourth floor)25 Francis St, Perth Cultural Centre, Perth Haemochromatosis Australia will host a...
View ArticleThe Australian Red Cross Blood Service is now Australian Red Cross Lifeblood
They’ve changed their name, and they’ve changed their look. Why? Because they’re more than blood donation. The new name reflects all the different ways they support Australian lives (with our help, of...
View ArticleCoronavirus Update
Haemochromatosis Australia is consulting with our medical advisors, health authorities and stakeholders to compile and share haemochromatosis related coronavirus information. We have prepared some...
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Where to find reliable information about Coronavirus
Wondering where to go for reliable and up to date information about coronavirus, how it might affect you and your family and what you should be doing? There seems to be lots of information but sadly...
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